The findings released by the parliamentary and health service ombudsman paint a troubling yet familiar picture regarding the state of care for individuals with autism and ADHD in England, as highlighted in a report from August 26. There has been an alarming increase of over 200% in complaints over the past five years, alongside extensive waiting periods for services. Many patients are resorting to spending significant amounts on private healthcare due to inadequate NHS support, compounded by a convoluted system that often denies individuals their legally guaranteed rights. These ongoing challenges have been consistently reported and raised by the British Association for Behavioural and Cognitive Psychotherapies (BABCP) over the years.
However, the ombudsman’s report falls short in addressing what transpires after individuals receive their assessments and diagnoses. A significant number of those diagnosed with ADHD and autism discover that there is an absence of established treatment pathways linked to their diagnoses. While the National Institute for Health and Care Excellence recommends cognitive behavioural therapy for the anxiety and depression frequently associated with neurodevelopmental disorders, as well as for some adult ADHD cases, the existing workforce shortages hinder the availability of these essential services. Consequently, receiving a diagnosis without access to appropriate treatment renders the process ineffective.
A forthcoming report by clinical psychologist Professor Peter Fonagy is anticipated to provide insights that will shape a new national strategy. This approach should extend beyond merely addressing waiting times for assessments; it needs to encompass the entire journey from initial recognition to diagnosis, treatment, and ongoing support. It is crucial to bridge the regulatory gaps highlighted by the ombudsman, but it is equally vital to ensure that the services that patients ultimately access are staffed by professionals who possess the specialized training necessary to provide the care that neurodivergent individuals require.
Helen Macdonald
Senior Clinical Adviser, BABCP
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